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Sexuality Institutional Review Board Resource Repository

The SIRBRR is for sexuality researchers to share their IRB experiences in order to help other sexuality researchers.

Resources

Disclaimer

The Sexuality Institutional Review Board Resource Repository is not affiliated with Widener University's Institutional Review Board.

General

Henrickson, M., Giwa, S., Hafford-Letchfield, T., Cocker, C., Mulé, N. J., Schaub, J., & Baril, A. (2020). Research ethics with gender and sexually diverse persons. International Journal of Environmental Research and Public Health, 17(18), 6615. https://doi.org/10.3390/ijerph17186615

 

Irvine, J. M. (2012). Can’t ask, can’t tell: How institutional review boards keep sex in the closet. Contexts, 11(2), 28-33. https://doi.org/10.1177/1536504212446457

 

Irvine, J. M. (2014). Is sexuality research ‘dirty work’? Institutionalized stigma in the production of sexual knowledge. Sexualities, 17(5–6), 632–656. https://doi.org/10.1177/1363460713516338

 

Jaffe, A. E., DiLillo, D., Hoffman, L., Haikalis, M., & Dykstra, R. E. (2015). Does it hurt to ask? A meta-analysis of participant reactions to trauma research. Clinical Psychology Review, 40, 40–56. https://doi.org/10.1016/j.cpr.2015.05.004

 

Johnson, B., Harrison, L. & Ollis, D.  (2020). Resisting ethics over-regulation in research into sexuality and relationships education: Insights from an Australian study. The Australian Educational Researcher, 47, 741–757. https://doi.org/10.1007/s13384-019-00373-9

 

Keene, S. (2021). Becoming a sexademic: Reflections on a ‘dirty’ research project. Sexualities, 25(5-6), 1234-1252. https://doi.org/10.1177/1363460720986915

 

Kuyper , L., de Wit, J., Adam, P., & Woertman , L. (2012). Doing more good than harm? The effects of participation in sex research on young people in the Netherlands. Archives of Sexual Behavior, 41, 497– 506 <<REVIEW FOR FIT>>

 

Kuyper, L., Wijsen, C., & de Wit, J. (2014). Distress, need for help, and positive feelings derived from participation in sex research: Findings of a population study in the Netherlands. The Journal of Sex Research, 51(3), 351-358. https://doi.org/10.1080/00224499.2012.736092 

 

Msibi, T. (2014). Contextualising ‘dirty work’: A response to Janice Irvine (2014). Sexualities, 17(5/6), 669-673. https://doi.org/10.1177/1363460714531278

 

Noland, C. M. (2012). Institutional barriers to research on sensitive topics: Case of sex communication research among university students. Journal of Research Practice, 8(1), 1-9. https://files.eric.ed.gov/fulltext/EJ998231.pdf

 

Rinehart, J. K., Nason, E. E., Yeater, E. A., & Miller, G. F. (2016). Do some students need special protection from research on sex and trauma? New evidence for young adult resilience in “sensitive topics” research. The Journal of Sex Research, 1–11. https://doi.org/10.1080/00224499.2016.1156047

 

Webber, V. & Brunger, F. (2018). Assessing risk to researchers: Using the case of sexuality research to inform research ethics board guidelines. Forum: Qualitative Social Research, 19(3). http://dx.doi.org/10.17169/fqs-19.3.3062

 

Wiederman, M. W. (1999). Sexuality research, institutional review boards, and subject pools. In G. Chastain & R. E. Landrum (Eds.), Protecting Human Subjects: Departmental Subject Pools and Institutional Review Boards (pp. 201-219). American Psychological Association. https://doi.org/10.1037/10322-009

 

Wiederman, M. W. (2002). Institutional review boards and conducting sexuality research. In M. W. Wiederman & B. E. Whitley (Eds.), Handbook for Conducting Research on Human Sexuality (pp. 479-504). Lawerence Erlbaum Associates.

 

Yeater, E., Miller, G., Rinehart, J., & Nason, E. (2012, 05/22). Trauma and sex surveys meet minimal risk standards: Implications for institutional review boards. Psychological Science, 23, 780-787. https://doi.org/10.1177/0956797611435131

Sex Work

Hammond, N., & Kingston, S. (2014). Experiencing stigma as sex work researchers in professional and personal lives. Sexualities, 17(3), 329–347. https://doi.org/10.1177/1363460713516333

 

Huysamen, M., & Sanders, T. (2021). Institutional ethics challenges to sex work researchers: Committees, communities, and collaboration. Sociological Research Online, 26(4), 942–958. https://doi.org/10.1177/13607804211002847

 

Sinha, S. (2017). Ethical and safety issues in doing sex work research: Reflections from a field-based ethnographic study in Kolkata, India. Qualitative Health Research, 27(6), 893–908. https://doi.org/10.1177/1049732316669338

Youth & Adolescents

Fisher, C.B. & Mustanski, B. (2014), Reducing health disparities and enhancing the responsible conduct of research involving LGBT youth. Hastings Center Report, 44, S28-S31. https://doi.org/10.1002/hast.367

 

Harger, B. and Quintela, M. (2017), The IRB as Gatekeeper: Effects on Research with Children and Youth. In Harger, B. & Quintela, M. (Eds.) Researching Children and Youth: Methodological Issues, Strategies, and Innovations (pp. 11-33). Emerald Publishing Limited. https://doi.org/10.1108/S1537-466120180000022002

 

Macapagal, K., Coventry, R., Arbeit, M.R. et al. (2017). “I won’t out myself just to do a survey”: Sexual and gender minority adolescents’ perspectives on the risks and benefits of sex research. Archives of Sexual Behavior, 46, 1393–1409. https://doi.org/10.1007/s10508-016-0784-5

 

Mathews, B., MacMillan, H. L., Meinck, F., Finkelhor, D., Haslam, D., Tonmyr, L., Gonzalez, A., Afifi, T. O., Scott, J. G., Pacella, R. E., Higgins, D. J., Thomas, H., Collin-Vézina, D., & Walsh, K. (2022). The ethics of child maltreatment surveys in relation to participant distress: Implications of social science evidence, ethical guidelines, and law. Child Abuse & Neglect, 123, 105424. https://doi.org/10.1016/j.chiabu.2021.105424
 

Mustanski, B. (2011). Ethical and regulatory issues with conducting sexuality research with LGBT adolescents: A call to action for a scientifically informed approach. Archives of Sexual Behavior, 40, 673–686. https://doi.org/10.1007/s10508-011-9745-1

 

Mustanski, B., & Fisher, C. B. (2016). HIV rates are increasing in gay/bisexual teens: IRB barriers to research must be resolved to bend the curve. American Journal of Preventive Medicine51(2), 249–252. https://doi.org/10.1016/j.amepre.2016.02.026

 

Mustanski, B., Coventry, R., Macapagal, K., Arbeit, M.R. & Fisher, C.B. (2017), Sexual and gender minority adolescents’ views on HIV research participation and parental permission: A mixed-methods study. Perspectives on Sexual and Reproductive Health, 4, 111-121. https://doi.org/10.1363/psrh.12027

 

Robinson, K. H., & Davies, C. (2014). Doing sexuality research with children: Ethics, theory, methods and practice. Global Studies of Childhood4(4), 250–263. https://doi.org/10.2304/gsch.2014.4.4.250

 

Santelli, J. S., Smith Rogers, A., Rosenfeld, W. D., DuRant, R. H., Dubler, N., Morreale, M., English, A., Lyss, S., Wimberly, Y., & Schissel, A. (2003). Guidelines for adolescent health research: A position paper of the society for adolescent medicine. Journal of Adolescent Health, 33(5), 396-409. https://doi.org/10.1016/j.jadohealth.2003.06.009

 

Ybarra, M. L., Prescott, T. L., Phillips, G. L., Parsons, J. T., Bull, S. S., & Mustanski, B. (2016). Ethical considerations in recruitingoOnline and implementing a text messaging–based HIV prevention program with gay, bisexual, and queer adolescent m. Journal of Adolescent Health59(1), 44–49. https://doi.org/10.1016/j.jadohealth.2016.03.020

Survivor Advocacy Work

Cattaneo, L. B., Stylianou, A. M., Hargrove, S., Goodman, L. A., Gebhard, K. T., & Curby, T. W. (2021). Survivor-centered practice and survivor empowerment: Evidence from a research–practitioner partnership. Violence Against Women, 27(9), 1252-1272. https://doi.org/10.1177/1077801220935196

 

Ghanbarpour, S., Palotai, A., Kim, M. E., Aguilar, A., Flores, J., Hodson, A., ... & Shim, H. (2018). An exploratory framework for community-led research to address intimate partner violence: A case study of the survivor-centered advocacy project. Journal of family violence, 33(8), 521-535. https://doi.org/10.1007/s10896-018-9987-y

 

Gill, A. (2018). Survivor-centered research: Towards an intersectional gender-based violence movement. Journal of family violence, 33(8), 559-562. https://doi.org/10.1007/s10896-018-9993-0

 

Hague, G., & Mullender, A. (2006). Who listens? The voices of domestic violence survivors in service provision in the United Kingdom. Violence Against Women, 12(6), 568-587. https://doi.org/10.1177/107780120628913

 

Kelly, J., Murray, C. E., & Crowe, A. (2017). See the Triumph Survivor Advocacy Training Program: Equipping survivors of abuse to engage in social justice advocacy. Journal of Counselor Leadership and Advocacy, 4(2), 114-123. https://doi.org/10.1080/2326716X.2017.1322928

 

Koss, M. P., White, J. W., & Lopez, E. C. (2017). Victim voice in reenvisioning responses to sexual and physical violence nationally and internationally. American Psychologist, 72(9), 1019.  https://doi.org/10.1037/amp0000233

 

Kulkarni, S. (2019). Intersectional trauma-informed intimate partner violence (IPV) services: Narrowing the gap between IPV service delivery and survivor needs. Journal of Family Violence, 34(1), 55-64. https://doi.org/10.1007/s10896-018-0001-5

 

Martel, A., & Walton-Roberts, M. (2020). Scaling a Survivor-Centric Approach for Survivors of Sexual Violence: The case of an action-based research project in India. In Routledge Handbook of Gender and Feminist Geographies (pp. 308-317). Routledge.

 

McGirr, S. A., & Sullivan, C. M. (2017). Critical consciousness raising as an element of empowering practice with survivors of domestic violence. Journal of Social Service Research, 43(2), 156-168.  https://doi.org/10.1080/01488376.2016.1212777

 

Murray, C. E., King, K., Crowe, A., & Flasch, P. (2015). Survivors of intimate partner violence as advocates for social change. Journal for Social Action in Counseling & Psychology, 7(1), 84-100. https://doi.org/10.33043/JSACP.7.1.84-100

 

Ragavan, M. I., Thomas, K., Medzhitova, J., Brewer, N., Goodman, L. A., & Bair-Merritt, M. (2019). A systematic review of community-based research interventions for domestic violence survivors. Psychology of Violence, 9(2), 139. https://doi.org/10.1037/vio0000183

 

Rossiter, K., Porteous, T., & Dhillon, M. (2020). Critical components of a survivor-centered response to campus sexual violence. In Crocker, D., Minaker, J., & Neuland, A. (Eds.) Violence Interrupted: Confronting Sexual Violence on University Campuses, (pp. 21-44). https://doi.org/10.2307/j.ctv176ktr9

 

Rowntree, M. (2010). ‘Living life with grace is my revenge’: Situating survivor knowledge about sexual violence. Qualitative Social Work, 9(4), 447-460. https://doi.org/10.1177/1473325009345786

 

Stavrevska, E. (2019, Dec. 10). Enter intersectionality: Towards an inclusive survivor-centered approach in responding to conflict-related sexual violencehttps://blogs.lse.ac.uk/wps/2019/12/10/enter-intersectionality-towards-an-inclusive-survivor-centred-approach-in-responding-to-conflict-related-sexual-violence/

 

White, J. W., & Sienkiewicz, H. C. (2018). Victim empowerment, safety, and perpetrator accountability through collaboration: A crisis to transformation conceptual model. Violence against women, 24(14), 1678-1696. https://doi.org/10.1177/1077801217743341

 

Wilson, J. M., & Goodman, L. A. (2021). “A Community of Survivors”: A grounded theory of organizational support for survivor-advocates in domestic violence agencies. Violence against women, 27(14), 2664-2686. https://doi.org/10.1177/1077801220981143

 

Zosky, D. (2011). A matter of life and death: The voices of domestic violence survivors. Affilia, 26(2), 201-212. https://doi.org/10.1177/0886109911405494